Ben was born with Down's syndrome and was only 23 months when he was diagnosed with acute myeloid leukaemia. He underwent six months of intensive chemotherapy which put him into remission.
We thought that that was the end of it yet it was just the beginning. Just 14 months later in 2006, Ben became ill again, this time diagnosed with acute lymphoblastic leukaemia (ALL).
Tests confirmed my worst fears. It was a crushing blow for all of us - he'd already been so much and we really didn't know what to think.
Ben was only the second person in the country known to have developed ALL after AML. Treatment began immediately but Ben struggled to cope with the toxicity of the chemotherapy. As a result of frequent bad reactions to the drugs he has missed a lot of his treatment and his chances of beating this terrible disease were only 50-60%
Yet Ben smiled his way through everything and we never gave up hope and simply kept on fighting. Then on the 24th of February 2014, after 9 long years fighting blood cancer, Ben finally got the all clear!
There are no words to express the relief, joy and happiness that the family felt on hearing the news. Ben does not really understand what that day meant to us all but we took him to his favourite place to celebrate and we had a wonderful family day. Although there will always be a little bit of fear that the leukaemia may return, with each passing day and year that fear reduces. We are so proud of Ben and the way he has fought cancer - he is one amazing little boy.
He is my little star and my hero and I want his story to be a positive one for parents with children diagnosed with a blood cancer. There is hope - if we can do it, then you can do it too.
Leukaemia & Lymphoma Research has invested over £1.5 million in projects which are developing ways to screen children with Down syndrome so leukaemia can be detected and treated before it fully develops and we cannot thank them enough for the work that they've done as without them, Ben might not still be here today.