Tammy A
Posted by

One Year Celebration

Tammy A
Posted by
20 Apr 2015

I always said from the beginning, when I beat this and I am allowed to travel, I will be celebrating at the beach.

October 9, 2013 I was admitted due to a very high white blood count.  I am thinking, I have an infection and that is why I have not felt good for the last month or two.  Needless to say, I was shocked to hear you have Leukemia on October 11, 2013 and we are going to transfer you to a different hospital to start treatment immediately.

I was admitted at UC Hospital on the 11th and started Chemo on the 12th.  My Induction and my new life started on the 12th.  But the funny thing about it, I was not worried about me, I was worried about my son, family and friends.  I knew deep down that I was going to be okay.  I don't know how or why, I just knew.  I tried not to dwell on the fact that day and tried to learn and understand what it was and what they were going to do.

It did take sometime to get adjusted to the One Second, One Minute, One Day, One Hurdle at a time.  You see, I worked 50-60 hours a week, then house work, laundry, cooking, homework, etc.  So I was a fast passed person who always had deadlines.  NOT ANYMORE...as soon as you can change that phylosophy, the better, happier and more content you will be...

I will continue later, since I have a date with my Oncologist.  1 Year testing and hopefully, my last Bone Marrow Biopsy...

 

 

Comments

20.04.2015

I had to stop my story early, since I have a doctor's appointment for my 1 Year and hopefully, my last Bone Marrow Biopsy.

I will add to it later.

21.04.2015

Tammy,

Thank you so much for sharing your experiences. I know exactly what you mean about diagnosis - I had exactly the same feelings of guilt and worry about my family and did everything I could to learn and understand what was going on. I think having my family to fight for helped keep me motivated and determined to remain positive.

What  type of leukaemia do you have and are you now in remission or still undergoing treatment? Good luck at the oncologist and do let us know how you get on. Together we will beat blood cancer. Andy 

Anonymous
22.04.2015

Hi Andy. AML. I am no longer going through treatments. I guess, I can say, I am in remission since it was 1 year on 4-7-15 from my BMT.

I am currently getting all of my one year tests completed (Bone Density, Biopsy, Pulmonary, etc...). Still trying to get my joints and muscles to strengthen up and cooperate with me. My density did come back low in my lower back and right hip (Osteopenia). At least it is not Osteoporosis....I'm afraid an Rheumatoid Doctor might be in my future. But if so, I will deal with that then.

Good Luck Andy. I hope all is going well with you. At what point are you at?

24.04.2015

Hi Tammy. Thanks so much for your reply! Great to hear that you're in remission although sorry to hear about the osteoporosis. That is quite a common side effect post transplant.

I'm actually in remission post BMT, too, and so far have been lucky on the bone density front although they've got me on some medication as the levels have dropped.

I'm now 10 years post transplant and up until recently was doing really, really well. However in the last couple of years I've been having some problems with my lungs which has seen me lose some lung capacity and I'm now on steroids to keep that under control.

They're not really sure what's causing the condition but they think it's related to the BMT. However having had no other complications I can't really complain and it's a small price to pay.

It's good that you're getting regular tests and I hope that they all went well? Stay in touch and thanks so much for sharing your story. Would you be happy for us to share this with our wider community on Facebook?

Anonymous
24.04.2015

Hello.

I would have no issue at all with this being shared. The more information is better. I did get wonderful news today...Results came back from my Bone Marrow Biopsy on Monday - 100% Engrafted and Cancer Free still. Now, if, I can get into the Rheumatologist to help me with my pains in my joints. It is a long road but one day at a time...

I was placed on Steroids 2 weeks ago to prevent me from getting Bronchitis and felt the best I have in years. But, they are out of my system now and back to reality. I really hope you the best with your health and your lung capacity...

Always thinking of everyone...