Posted by

Staring and obsessing

Posted by
16 Jul 2017

Tissue viability, poo and potions.

I have spent, over the last eight weeks, more time staring at a baby's bum than is healthy.

Boy, in the first phase of steroids and chemo, developed these nasty ulcers all around his bum, a reaction to the constant diarrhoea. Being neutropenic, the skin has taken forever to start healing. Combination therapy of Flaminal, Metanium, Medihoney, Sudocrem, fresh air and gentle Dermol washing finally got the tissue to begin healing but there's still red areas and, with the new regimen, the skin is looking pretty fragile in places.

So we need to keep an eye on his behind, the poor lad. Is it getting better? Is it getting worse? How much worse? Is this a downward spiral? Is it going to be as bad as last time? Are we doing enough? Are we doing too much? Can you put Metanium on top of Flaminal? How many products can you combine? Should you combine? Am I asking too many questions? How many is too many?

We try and keep his backside open to the air to dry out a bit between nappy changes, but as he's feeling a bit better he's started crawling around again, so we run the danger of him pooing freely on the carpet then dragging his dangling central line through the... some things don't bear thinking about.

Meanwhile, Boy is laughing and chasing after his big sister, supremely unconcerned by it all. 



I had forgotten about the sore bum bit of treatment. My son had a C-Diff infection and was squirting green poo everywhere and had such a sore bottom. So sorry you're having to deal with this horrid side affect. 



Really sorry to hear that your little lad is having to endure side-effects like this which sound really nasty.

It sounds like you're doing everything that you can although I understand why you're concerned. If you need to talk our patient experiences team are always here if you ever need a chat and might be able to point you in the direction of some useful info or support.

I'm sure you've been in touch with your son's treatment team already but they're certainly worth getting in contact with and may have things that can alleviate some of the soreness and/or side-effects.

Best of luck with everything going forwards and for all your openess and honesty. Blogs like this remind us all that there is still a long way to go in the battle against childhood blood cancer as treatments are still so severe.


Ed, that is certainly a new perspective on treatment and gave me many mental images. Ed, take care of yourselves, Boy and don't forget his big sister and please keep blogging.


Hi Ed, this reminds me of something we dealt with right at the beginning (18 months ago now since my son was diagnosed). 

I'm acutely aware of the curse of too much anecdotal advice but our consultants at the Marsden found a successful way to treat it. 

Happy to share if you like, you can get in touch through our blog https://edwardthegreatblog.wordpress.com.

Hopefully it's better by now and you can ignore this. Either way, keep going.

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