Eleanor Baggley
Posted by
Eleanor Baggley

Welcome!

Eleanor Baggley
Posted by
Eleanor Baggley
23 Jun 2014

Welcome to the inaugural Bloodwise Haemato-Oncology Nursing Bulletin!

This monthly bulletin has been developed with our Nursing Advisory Panel to share updates and news from the charity and our researchers and to keep you informed about the work we are doing with and for nurses. We hope you enjoy reading this edition – please do share with your colleagues and head over to our newly launched nurse’s Facebook group to share your thoughts.

Who are we?

Our mission as a research charity is, quite simply, to beat blood cancer. There have already been huge strides forward in blood cancer research: there are new treatments, more options, and our increasing knowledge of the many different diseases has dramatically affected the impact of a blood cancer diagnosis. But we are not there yet and we will not stop until every single person with blood cancer survives.

We fund research across the country into all 137 types of blood cancer, from AML to CML, MDS to MPNs. At any one time we have over £90million invested in research and we are currently funding over 1,000 researchers and clinicians across 220 active research projects. We fund the Haematological Malignancy Research Network based in Yorkshire and our Trials Acceleration Programme is delivering clinical trials to blood cancer patients, enabling quicker and easier access to life-saving drugs and treatment.

Last year we added a Support Line and associated services to supplement the research that we fund. Our Patient Need project highlighted how isolated blood cancer patients feel and how they often do not know where to turn for information and support. These new services are helping to build a supportive and unified community of people affected by blood cancer.

Our work with nurses

The Nursing Advisory Panel was created in response to our research into Patient Need. This project revealed that the experience patients have in hospital is inextricably linked to the nursing care they receive. In order for us to improve patient experience, we wanted to gain an understanding of the issues faced by all nurses treating haemato-oncology patients and to support them via our nurse-led group, the Nursing Advisory Panel. For more information about the Panel, email support@bloodwise.org.uk.

Talking to nurses at events, in hospitals and online has been an eyeopening experience for us. You've given us such a fascinating insight into your roles and the issues you face, which has encouraged us to think more widely about the work we do with and for nurses. This year we have really set our focus on what we can do to support you; we met with nurses around the country, we distributed a survey, we've encouraged conversation and feedback within our Nursing Advisory Panel. To put it simply: we want to continue to support you so that you can continue to carry out the fantastic, life changing work that you do. We're working on a number of projects which we will keep you updated on in these monthly bulletins, but is there anything we've missed? Get in touch if there's something you feel that we should be working on or if there is a way that we can support you that we've not yet thought of.

Do you have something to share with the haemato-oncology nursing community? Drop us an email at support@bloodwise.org.uk to find out how you can get your update, story or event featured in this monthly bulletin.